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My Not so Normal Life

What is normal? To me it is typically everything that we are not…going out to eat for a family dinner, going to the movies as a family, everyone piling in our bed to watch Saturday morning cartoons. I felt like I was looking out of our window at everyone else living the life I wanted to live. I was in a much better state of mind at this point, but I grew bitter and jealous of everyone around me. The sad part was I didn’t even realize it.

At church I joined our MOMS group (ministry of mothers sharing). This group of ladies is like no other I’ve ever met. Although, people come and go, the group is so clearly led by the Holy Spirit. Before I had Lexi I attended a few meetings, but it just made me sad, in the mommy category I had nothing in common with these ladies. But once my life was more “normal” I opened my heart. And thank God I did because this ministry has changed my life.

We gather once a week and share our faith walk through book studies, outreach programs, and other fun mommy topics. I had never met a group of Catholic women who seemed so dedicated to their faith. Before MOMS group my Catholic faith was something dear to me, but I had never taken the time to really learn why we do what we do. In the Catholic faith there is ALOT to know. We have many rituals and deep beliefs that were founded by Jesus Himself. But I didn’t know all of this, it was just something I did because I always had.  No matter what your belief system is there is so much to learn, we should all know exactly why we believe every single thing we believe. It’s not enough to just go through the motions, I know that first hand because when in crisis I was completely lost.

“For this very reason, make every effort to supplement your faith with virtue, virtue with knowledge, knowledge with self-control, self-control with endurance, endurance with devotion.” 2 Peter 1:5

image (15)We had a taste of normalcy with Lexi and we were ready for more…more kids. In the world of special needs parenting the most difficult of all time subjects is who will take care of my child when I’m no longer on this earth. I am her only mommy, the only one who will ever love her with a mother’s love. If I’m not here, who will make sure her hair is brushed out of her face, who will give her ‘I love you’ ear kisses at night before bed, who will make sure she is loved and knows Gods love, who will make sure she has dignity every day of her life. That is often handed down to siblings. But that is a tall order for one, so maybe Lexi needs a brother or sister? I know that may not sound like the most loving reason to bring a child into this world, and there was much more thought and prayer that went into it, but in this special needs world practicality is a must.

Some drugs are ototoxic or can cause harm to your auditory system thereby buy generic cialis causing tinnitus. It is important for a new mom to create an approved exercise program, stay hydrated, get as much sleep as the newborn will allow, and eat the right kinds of food, and abstain from drinking and smoking. cialis super When ordering this drug, cheap viagra 100mg he can quickly place an order to buy online medicines. As time passed, different experts introduced different belt systems levitra online http://djpaulkom.tv/sim-djs-dj-paul-x-carnage-bang-she-killin/ in Kenpo karate. When an ultrasound revealed we were having a boy, I nearly fell off the table. I wanted a boy, but never thought it would happen. Andrew Paul Crook, was born 5 days after Jesus’ birthday and he loves his sister in a way only he could. image (14)He always gives her kisses and wants to make sure she’s okay. But I worry, is that too much pressure for my children, will they feel burdened? And God asks, “Do you feel burdened” (No!) “I gave them what they need”.  But still the emotions surrounding this subject always bring fear.

“Be strong and courageous. Do not be afraid or terrified because of them, for the LORD your God goes with you; he will never leave you nor forsake you.” Deuteronomy 31:6

This new baby brought great joy, but another child also brought great stress. And this particular boy was a wild one. I adore Drew, but he has always been a handful, for goodness sake he broke his arm before he was even 2 years old. image (13)I began to loose my footing by putting way too much pressure on myself. Katie needs more therapy, she’s not communicating or walking, it’s my fault, my kids need to eat healthy and watch less TV, Lexi needs to know all of her letters before 4K , is Andy happy?, I need to be exercising more and on and on the spiraling thoughts went. It always ended in explosion. I was yelling alot! I’m talking snow monster from the movie Frozen yelling, you know the part, “AND DON’T COME BACK!!” I was not being the mother I wanted to be, so a friend recommended an amazing therapist.

I discovered that I was stalled in a grief stage. What? Katie was 8 years old, wasn’t I over this yet? She helped me realize that each new stage in life brings new challenges and I will go through this grieving period at each new discovery…(Great!) But once I realized I was grieving over this picture of a normal family life I wanted so badly, I started to heal. She helped me see that what everyone else has is not what it appears and probably not so normal. You know, the grass is not always greener on the other side. I’ve come to know that every single one of us struggle with something and when we look at each other some of those struggles are more obvious, but just because you can’t see them doesn’t mean they are not there. Ken and Barbie are not perfect! And the really cool thing is that God customizes us for our own struggles. I will keep mine thank you very much and you can have yours because that’s the way God wants it.

Next post I will talk about a very NORMAL moment in life that altered everything about me…for the better.

The Roller Coaster Ride of Life

God blessed us with another pregnancy. We were excited, but nervous. Then after just a few weeks I had a miscarriage. The on call doctor said there was likely something wrong with the baby and it would not have developed properly. She did not know about Katie. I was beyond devastated! The only thing I could think was, this baby had the same thing Katie has, but so severe it didn’t make it. To me that meant NO MORE KIDS.

I spent some time mourning, grieving the loss of this child. I later heard a story on EWTN radio, a priest said that when we go to heaven any child we loose to miscarriage will be waiting for us. Since I never met this child I had never thought of that, but since conception that baby had a soul. That brought me great comfort, I can’t wait to meet her or him someday.

I also grieved the loss of hope for the typical child I wanted so badly.  My desire for a typical child was not to fill a void, Katie filled my heart. image (12)I loved her so deeply, I can remember worrying that I couldn’t love another child as much as her. But I just knew our family was not complete.

After seeing my regular OBGYN, she reassured me that early miscarriages were so common and it was more likely a progesterone issue rather than developmental problems. After waiting the required 3 months we quickly got pregnant again. I look back in amazement, how did we have that courage. God is the only source of that peace because everything on earth said no.

“Trust in the Lord with all your heart, and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths.” Proverbs 3:5-6

If we rely solely on this world we will never make it, because in our worldly minds we have no idea what is possible. Our minds are so closed off to only what we see, what we know. But with God there is so much more, so much hope and so many beautiful opportunities.

During my entire pregnancy God gave me comfort and peace. I felt in my heart, “Whatever God has planned for this baby I will accept.” The first part of the pregnancy was smooth other than gestational diabetes which restricted all the yummy foods and required daily insulin shots. A small price to pay for a healthy baby. But when week 33 arrived, the same week Katie was born, I was admitted to the hospital for low amniotic fluid. Walking from the doctors office to the hospital was so surreal. My mind was racing, but since the issue was different from my pregnancy with Katie I felt okay. I ended up on bed rest for the rest of the pregnancy.

Thankfully we had so much help with Katie from our parents. I don’t know what we would do without their constant love and support.

image (10)In May of 2008, we were blessed with the arrival of Alexis Drew Crook one early Sunday morning. She was perfect in every way. I quickly realized I was wrong, instantly my heart grew bigger as I fell in love with my new baby girl. Lexi must have thought she was a rock star as we marveled at all the things she could do. Katie loved her too, I can’t explain it, but I knew from the beginning these sisters had a different love, a deeper love, one that would go beyond words spoken or hugs given, one founded by God for a special purpose.

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A sister is a gift to the heart, a friend to the spirit, a golden thread to the meaning of life.

Isadora Jamesimage (9)

image (11)

We grew into our not so normal life. We learned how to use a wheelchair, Lexi learned what seizures looked like way too early in life and Katie just couldn’t gain weight. At 5 years old she only weighed 25 pounds. After years of struggling with the idea of a feeding tube it finally became a necessity.

So we did it, that’s when I really felt like a nurse. Syringes, feeding pumps, extension tubes, a button in her stomach, it was all quite an adjustment. Not to mention the doctor read an x-ray wrong and did not do a procedure she needed, so at first she literally threw up everything we put into her belly.  I have never been hurled on so many times! Cleaning up vomit was as ordinary as cleaning toilets in our house. It actually became a dark time for us.

The part that no one told me, because I really didn’t have a special needs mommy mentor, was that just because you recover from one stage does not mean you’ll never hit the bottom again. I feel like this life is a roller coaster ride, just when you think you’ve made it, your seat goes flying down hill with no end in sight.

The feeding tube required a whole new way of life, since she vomited so much we could only feed her small amounts every 2-3 hours, which is basically what we still do. It makes leaving the house a challenge and for a long time we just didn’t leave. My anger grew again as I became bitter and jealous of everyone else’s life. We now had a typical child and I wanted a typical life. That was an emotion I didn’t expect. Before Lexi, I didn’t know what normalcy was so I didn’t miss it as much. But now I wanted to go and have fun outside of four walls that seemed to be closing in on us.

Just because you have a close relationship with God does not mean you avoid pain. With my stronger faith the depth of this pain just didn’t seem as bad. I knew I had gotten myself out before, I knew I could do it again.

“But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gadly of my weaknesses, so that the power of Christ may rest upon me.” 2 Corinthians 12:9

Next post the Roller Coaster continues.